Posing in front of the fish aquarium that was bought by the "Make a
Wish Foundation", Austin and his dad Kevin, were gracious and happy for
this moment. Austin has Spinal Muscular Atrophy, an often fatal disease
and just celebrated his 4th birthday 10 days ago.
Austin shared his hobbies. His fish aquarium is the home of saltwater
fish Nemo and Dora and recently some crabs that Arron the fish guy
brought over. "Hey dad, did you see the new crabs we got? You know what
those crabs do? They eat algae and then spit it back out." Austin is so
verbal and intelligent he often seemed like a mini adult.
Austin loves dinosaurs and has many in his bedroom suited for any
lucky 4 year old. He told all about the different species that decorated
his room and of his favorite, the stegosaurus. "This one has plates not
spikes" he shared. His room was painted orange his favorite color. To
the color analyst, orange represents enthusiasm, fascination, happiness,
creativity, determination, attraction, success, encouragement, and
stimulation. These traits describe Austin perfectly.
Austin bragged about his older brother. "I need help with Legos but
Peyton can build lots of Lego stuff. He can build the castles and can
read the directions to any Lego stuff." He also talked about his best
friend Ashley, a kindergartner next door who comes over to play. Austin
receives itinerate services and is home-schooled. He loves art and
shared the baby owl "Bill" made of cotton and a large pinecone he made
with his teacher Mrs. Jane.
Austin is very much a typical 4 year old. But under the hobbies and
bragging, another story is unfolding. He is confined to his wheelchair
and has bouts of life threatening illnesses every few months. He has a
teacher from Olentangy come to his house for his educational needs as
opposed to going to preschool due to the risk of his health needs. His
health is always on guarded status and his parents have to balance
raising 2 very intelligent boys in a loving home and the medical
procedures of a hospital.
Kevin Colwell shared how Delaware County Bd. of Developmental
Disabilities has helped Austin and his family. When Austin was first
diagnosed his SMA right before his first birthday, it was apparent the
current house they were living in was no longer suited for their needs.
As they investigated options, the Colwells learned that Delaware County
was where they needed to bring Austin. They had heard of the outstanding
services provided in Delaware County as compared to where they were
living and promptly put their house up for sale. They set out to build a
house that would suit their younger son’s needs; even living in a small
apartment to do so.
The first thing that Delaware County Family Directed Resources helped
with, was the purchase of a special queen-size bed. "When our oldest son
was ready for his big boy bed, we gave him ours and we bought a new bed
for ourselves. We didn’t know at the time how important this action
would be. We enjoyed the extra space when we would read before bedtime
or when Peyton was sick and needed a little extra cuddling. When Austin
came around, we just naturally assumed we would get him a queen size big
boy bed when the time came." Little did they know how invaluable the bed
would be. With Austin’s new diagnosis, a special bed was purchased. It
is able to be raised and lowered to fit Austin’s medical needs and has
memory positions. Because Austin does not walk, run or climb, his lungs
do not clear. The bed massages him to help alleviate this. " The bed has
been invaluable." says Kevin. "The many times that Austin has been sick,
we can rest next to him to keep a close eye on him. He can raise the bed
up so he can see his TV in the morning when he has his breakfast. On the
days that he is confined to bed, we can get in beside him and read."
Although the house they currently live in was built with Austin’s
needs in mind. The bathroom still needed a few modifications as Austin
grew. His bathroom was modified using Family Resources to accommodate
his growing needs. Just recently his bedroom was fitted with a shelving
alcove area to house his growing medications and equipment.
The family was able to buy a special bike trailer for Austin so he
can enjoy bike rides with his whole family. It is specially designed
with special seating and to fit onto Kevin’s bike. It has plastic
windows and a netting cover to go over the front to keep the bugs out
and the breeze in.
As a way to communicate to their friends and family globally, the
Colwells have found a free web site devoted to this very purpose at
www.caringbridge.org